Available in Multilingual Revenue Non-profit | Created by Pedro Oliveira | |
Type of site Open database of innovations developed by patients and caregivers Owner Católica Lisbon School of Business & Economics Slogan(s) Sharing solutions, improving life |
Patient Innovation is an online platform dedicated to the sharing of solutions developed by individuals afflicted with a health disorder, as well as by their caregivers. The website also provides rating tools and options to report and track modified solutions that these individuals develop.
Contents
History
Patient Innovation started as an academic research project aimed to study user innovation by patients and their non-professional caregivers, funded by The Portuguese Science and Technology Foundation (FCT), Carnegie-Mellon Portugal Program and Pieter Pribila Foundation. The project was founded by Prof. Pedro Oliveira from Católica Lisbon School of Business & Economics.
As one of the project's outcomes, the online platform was launched on February 7, 2014, at an inaugural event in Lisbon, Portugal. The project is supported by a number of distinguished individuals, including Nobel Laureate Sir Richard J. Roberts, Eric von Hippel, Nobel Laureate Aaron Ciechanover, Katherine Strandburg, Robert Langer, and Lee Fleming – who serve on the Advisory Board.
Administration
Patient Innovation is institutionally located at Católica Lisbon School of Business & Economics, and is led by Prof. Pedro Oliveira (Catolica-Lisbon) and Prof. Helena Canhão from the University of Lisbon School of Medicine. The project team includes medical doctors from University of Lisbon School of Medicine.
Patient Innovation terms of use include the agreement that users do not include the content that promote "self-mutilation, eating disorders or hard drug abuse". To enforce the terms of service, all the submitted solutions go through a screening by the project's medical team, who check whether for submission complies with the terms and services advertised on the Patient Innovation site. Only the validated solutions are posted on the platform. In 36 months, over 650 solutions developed by patients, (non-professional) caregivers or collaborators from over 50 countries were submitted, curated and shared to improve the lives of many other who struggle with different health conditions.
Main achievements
Patient Innovation Awards
Patient Innovation promotes the annual Patient Innovation Awards for patients, caregivers and collaborators who have developed innovative solutions to cope with the challenges of their health condition, to assist others they care about, or in some cases, to help people they don't even know. The winners of the 1st Patient Innovation Award were announced in February 2015. They are:
The 1st Patient Innovation Award Ceremony was held in Lisbon on July 13, 2015 at the Calouste Gulbenkian Foundation. European Commissioner Carlos Moedas was one of the distinguished guests.
The winners of the 2nd Patient Innovation Award were announced in February 2016. They are:
The 2nd Patient Innovation Award Ceremony was held in November 2016 during the WebSummit.
Research
The team conducts research on the role of patients of chronic diseases, and their caregivers, in creating new solutions to help them cope with their health conditions. Recently they administered a survey over phone to 500 rare disease patients/caregivers with the following objectives: to measure frequency of patient innovation in a population of rare diseases patients; to measure efforts by patients to share their solutions with others; to explore which factors drive patients to come-up with solutions and share them with others. The solutions reported by patients were validated for their novelty by two medical professionals. 40 individuals (8% of sample) reported solutions that they personally find valuable, and that are also evaluated as novel by expert medical evaluators. If anything like this fraction of innovators holds for the overall population of hundreds of millions of people world-wide estimated to be afflicted by rare diseases, patients and their caregivers may be a tremendous potential resource to improve management and care for many who are similarly afflicted.