The Lullaby Trust (formerly FSID) is a British charitable organisation aiming to prevent unexpected deaths in infancy and promote infant health. The Lullaby Trust funds research, supports families whose babies have died suddenly and unexpectedly, disseminates information on infant health, baby care and sudden infant deaths to health professionals and the general public, and works with professionals to improve investigations when a baby dies.
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SIDS
Sudden Infant Death is the sudden and unexpected death of a baby or toddler that is initially unexplained. Deaths that remain unexplained after a post mortem examination are often classified as SIDS (Sudden Infant Death Syndrome). It has been known in the past as Cot Death, however this term is misleading as evidence shows that not all cases of SIDS occurred when a baby was in a cot, and so the term has been largely abandoned.
History
Over a third of a century ago – in 1971 – a meeting was convened in Cambridge as a result of one grandmother's search to find out why her baby grandson had died suddenly and unexpectedly. This gathering led to the founding of the world's first organisation devoted to research, information and support in the field of infant deaths.
Since The Lullaby Trust teamed up with the Department of Health to launch the campaign to reduce the risk of sudden infant death in 1991, the UK sudden infant death rate has fallen by 75%, and has been hailed one of the most successful public health campaigns ever, estimated to have saved more than 20,000 lives.
The Lullaby Trust has gone on to become one of the world's leading authorities on sudden infant death, the UK's largest funder of medical research into sudden infant death, the main source of support for bereaved families and a major information provider.
Services
The Lullaby Trust operates throughout England, Wales and Northern Ireland. As well as the team in head office there are also eight Regional Development Officers who actively promote The Lullaby Trust's campaigns across the country.
Fundraising
Events to raise money for The Lullaby Trust range from skydives to marathons, treks and cycles. An example of a fundraising event is the Mile in Memory walk, undertaken to honour the life of someone special to the supporter. In 2012, the event raised £67,000 and took place in over 65 different venues.
Supporters
In 2012, British Independent Record label, Audio Antihero, released a benefit compilation album titled Some.Alternate.Universe to raise money for The Lullaby Trust. The album featured artists like Jeffrey Lewis, Nosferatu D2, Jonah Matranga, Benjamin Shaw, Eddie Argos (Art Brut), Jack Hayter (Hefner), Still Corners, Fighting Kites, Johnny Foreigner, Paul Hawkins & The Awkward Silences.