The Sickle Cell Disease Association of America, Inc. (SCDAA) is a nonprofit organization with the sole purpose of supporting research, education and funding of individuals, families those who are impacted by sickle cell disease.
"To advocate for and enhance our membership's ability to improve the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions, while promoting the search for a cure for all people in the world with sickle cell disease."
The Sickle Cell Disease Association of America, Inc. originated in Racine, Wisconsin. Representatives from 15 different community-based sickle cell organizations came together at Wingspread, a community center, as guest of the Johnson Foundation. There was a common belief that there was a need for national attention to sickle cell disease. After a meeting, they created the "National Association for Sickle Cell Diseases." The name was changed in 1994 to the Sickle Cell Disease Association of America, Inc. Over the course of several years, the organization has grown into over 40 different branches. The organization has partnered with several different medical facilities, local and state government agencies to pursue national health care objectives. Some of the organization's partnerships include: National Association for the Advancement of Colored People (NAACP), National Institutes of Health (NIH), Health Resources and Services Administration (HRSA)), Centers for Disease Control (CDC), United Way of America, the Robert Johnson Foundation and many more.
Research
Public Health Education
Professional Health Education
Patient Services
Community Services
Support to Global Organizations and Practitioners
The Sickle Cell Disease Association of America, Inc. hosts several events throughout each year. It hosts the Annual National Sickle Cell Walk with the Stars the weekend after Labor Day each year. The inaugural walk was held on September 6, 2014 at Lake Montebello in Baltimore, Maryland. This event typically will have a variety vendors, kid activities, prizes and celebrity guests. The Sickle Cell Disease National Convention is held annually during the first weekend of October in Baltimore's Inner Harbor. The event will feature themed experience, with prizes, awards, auctions and educational sessions.
Tionne 'T-Boz' Watkin - The National Celebrity Spokesperson for the SCDAA.
Tiki Barber - The former NFL running back has sickle cell disease and does his part educating others.
Prodigy - Hip Hop star promotes sickle cell awareness at different events, including the 2011 National Convention.
Ryan Clark - NFL Super Bowl champion with the Pittsburgh Steelers.
Devin McCourty and Ryan McCourty - Twins fight Sickle Cell Disease with Tackle Sickle Cell Organization.
Kier "Junior" Spates - SCDAA National Celebrity Ambassador
Larenz Tate - Actor is passionate about sickle cell awareness.
Santonio Holmes - Runs benefit for son with sickle cell disease.
North Alabama Sickle Cell Foundation - Huntsville
SCDA - West Alabama Chapter - Northport
SCDAA Central Alabama Chapter - Birmingham
SCDAA - Alabama Chapter State Association - Mobile
SCDAA - Mobile Chapter
Sickle Cell Foundation of Greater Montgomery, Inc. - Montgomery
Southeast Alabama Sickle Cell Association, Inc. - Tuskegee
Tri County Sickle Cell Association, Inc. - Selma
Sickle Cell Anemia Society of Arizona, Inc. - Phoenix
Sickle Cell Disease Foundation of California - Los Angeles
Colorado Sickle Cell Association - Denver
Citizens for Quality Sickle Cell Care, Inc. - New Britain/Hartford
SCDAA Southern Connecticut, Inc. - Bridgeport/New Haven
SCDAA of Escambia & Santa Rosa Counties - Pensacola
SCDAA of Levy/Marion Counties - Ocala
SCDAA - Dade County Chapter, Inc. - Miami
SCDAA - St. Petersburg Chapter
Sickle Cell Association of Hillsborough County - Tampa
Sickle Cell Disease Association of Broward County - Ft. Lauderdale
Sickle Cell Disease Association of Florida, Inc. - Pensacola
Sickle Cell Disease Association of Tri-County, Inc. - Orlando
Sickle Cell Disease Association of Upper Pinellas/Pasco/Hernando Counties, Inc. - Clearwater
Sickle Cell Disease Association of Volusia County - Daytona Beach
Sickle Cell Foundation of Palm Beach County & Treasure Coast Inc. - West Palm Beach
Sickle Cell Foundation, Inc. - Tallahassee
Sickle Cell Foundation of Georgia, Inc. - Atlanta
Sickle Cell Disease Association of Illinois - Chicago
Baton Rouge Sickle Cell Anemia Foundation
Northeast Louisiana Sickle Cell Anemia Foundation - Monroe
SCDAA - Northwest Louisiana - Shreveport
Sickle Cell Anemia Research Foundation - Alexandria
Southwest Louisiana Sickle Cell Anemia, Inc. - Lake Charles
Maryland
Maryland Sickle Cell Disease Association, Inc. (MSCDA)
Sickle Cell Disease Association of America, Inc. - Baltimore
Greater Boston Sickle Cell Disease Association - Dorchester
SCDAA Michigan - Detroit
Nevada Childhood Cancer Foundation - Las Vegas
The Sickle Cell Association of New Jersey, Inc. - Newark
The Sickle Cell Council of New Mexico - Albuquerque
Queens Sickle Cell Advocacy Network - Queens Village
Bridges Pointe Sickle Cell Foundation - Durham
Community Health Interventions and Sickle Cell Agency, Inc. - Fayetteville
Piedmont Health Services and Sickle Cell Agency - Greensboro
SCDAA - Eastern North Carolina - Jacksonville
SCDAA - Ohio Sickle Cell & Health Association - Columbus
Sickle Cell Awareness Group of Greater Cincinnati
Sickle Cell Anemia Foundation of Oregon - Portland
Children's Sickle Cell Foundation, Inc. - Pittsburgh
SCDAA - Philadelphia/Delaware Valley Chapter
The South Central PA Sickle Cell Council - Harrisburg
James R. Clark Memorial Sickle Cell Foundation - Columbia
Sickle Cell Foundation of Tennessee - Memphis
SCDAA of Tarrant County - Fort Worth
Sickle Cell Association of Austin and San Antonio Marc Thomas Foundation - Austin
Sickle Association, Inc. - Norfolk
