The Sickle Cell Disease Association of America, Inc. (SCDAA) is a nonprofit organization with the sole purpose of supporting research, education and funding of individuals, families those who are impacted by sickle cell disease.
"To advocate for and enhance our membership's ability to improve the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions, while promoting the search for a cure for all people in the world with sickle cell disease."
The Sickle Cell Disease Association of America, Inc. originated in Racine, Wisconsin. Representatives from 15 different community-based sickle cell organizations came together at Wingspread, a community center, as guest of the Johnson Foundation. There was a common belief that there was a need for national attention to sickle cell disease. After a meeting, they created the "National Association for Sickle Cell Diseases." The name was changed in 1994 to the Sickle Cell Disease Association of America, Inc. Over the course of several years, the organization has grown into over 40 different branches. The organization has partnered with several different medical facilities, local and state government agencies to pursue national health care objectives. Some of the organization's partnerships include: National Association for the Advancement of Colored People (NAACP), National Institutes of Health (NIH), Health Resources and Services Administration (HRSA)), Centers for Disease Control (CDC), United Way of America, the Robert Johnson Foundation and many more.
ResearchPublic Health EducationProfessional Health EducationPatient ServicesCommunity ServicesSupport to Global Organizations and PractitionersThe Sickle Cell Disease Association of America, Inc. hosts several events throughout each year. It hosts the Annual National Sickle Cell Walk with the Stars the weekend after Labor Day each year. The inaugural walk was held on September 6, 2014 at Lake Montebello in Baltimore, Maryland. This event typically will have a variety vendors, kid activities, prizes and celebrity guests. The Sickle Cell Disease National Convention is held annually during the first weekend of October in Baltimore's Inner Harbor. The event will feature themed experience, with prizes, awards, auctions and educational sessions.
Tionne 'T-Boz' Watkin - The National Celebrity Spokesperson for the SCDAA.Tiki Barber - The former NFL running back has sickle cell disease and does his part educating others.Prodigy - Hip Hop star promotes sickle cell awareness at different events, including the 2011 National Convention.Ryan Clark - NFL Super Bowl champion with the Pittsburgh Steelers.Devin McCourty and Ryan McCourty - Twins fight Sickle Cell Disease with Tackle Sickle Cell Organization.Kier "Junior" Spates - SCDAA National Celebrity AmbassadorLarenz Tate - Actor is passionate about sickle cell awareness.Santonio Holmes - Runs benefit for son with sickle cell disease.North Alabama Sickle Cell Foundation - HuntsvilleSCDA - West Alabama Chapter - NorthportSCDAA Central Alabama Chapter - BirminghamSCDAA - Alabama Chapter State Association - MobileSCDAA - Mobile ChapterSickle Cell Foundation of Greater Montgomery, Inc. - MontgomerySoutheast Alabama Sickle Cell Association, Inc. - TuskegeeTri County Sickle Cell Association, Inc. - SelmaSickle Cell Anemia Society of Arizona, Inc. - PhoenixSickle Cell Disease Foundation of California - Los AngelesColorado Sickle Cell Association - DenverCitizens for Quality Sickle Cell Care, Inc. - New Britain/HartfordSCDAA Southern Connecticut, Inc. - Bridgeport/New HavenSCDAA of Escambia & Santa Rosa Counties - PensacolaSCDAA of Levy/Marion Counties - OcalaSCDAA - Dade County Chapter, Inc. - MiamiSCDAA - St. Petersburg ChapterSickle Cell Association of Hillsborough County - TampaSickle Cell Disease Association of Broward County - Ft. LauderdaleSickle Cell Disease Association of Florida, Inc. - PensacolaSickle Cell Disease Association of Tri-County, Inc. - OrlandoSickle Cell Disease Association of Upper Pinellas/Pasco/Hernando Counties, Inc. - ClearwaterSickle Cell Disease Association of Volusia County - Daytona BeachSickle Cell Foundation of Palm Beach County & Treasure Coast Inc. - West Palm BeachSickle Cell Foundation, Inc. - TallahasseeSickle Cell Foundation of Georgia, Inc. - AtlantaSickle Cell Disease Association of Illinois - ChicagoBaton Rouge Sickle Cell Anemia FoundationNortheast Louisiana Sickle Cell Anemia Foundation - MonroeSCDAA - Northwest Louisiana - ShreveportSickle Cell Anemia Research Foundation - AlexandriaSouthwest Louisiana Sickle Cell Anemia, Inc. - Lake CharlesMaryland
Maryland Sickle Cell Disease Association, Inc. (MSCDA)Sickle Cell Disease Association of America, Inc. - BaltimoreGreater Boston Sickle Cell Disease Association - DorchesterSCDAA Michigan - DetroitNevada Childhood Cancer Foundation - Las VegasThe Sickle Cell Association of New Jersey, Inc. - NewarkThe Sickle Cell Council of New Mexico - AlbuquerqueQueens Sickle Cell Advocacy Network - Queens VillageBridges Pointe Sickle Cell Foundation - DurhamCommunity Health Interventions and Sickle Cell Agency, Inc. - FayettevillePiedmont Health Services and Sickle Cell Agency - GreensboroSCDAA - Eastern North Carolina - JacksonvilleSCDAA - Ohio Sickle Cell & Health Association - ColumbusSickle Cell Awareness Group of Greater CincinnatiSickle Cell Anemia Foundation of Oregon - PortlandChildren's Sickle Cell Foundation, Inc. - PittsburghSCDAA - Philadelphia/Delaware Valley ChapterThe South Central PA Sickle Cell Council - HarrisburgJames R. Clark Memorial Sickle Cell Foundation - ColumbiaSickle Cell Foundation of Tennessee - MemphisSCDAA of Tarrant County - Fort WorthSickle Cell Association of Austin and San Antonio Marc Thomas Foundation - AustinSickle Association, Inc. - Norfolk