Ellen Wright Clayton is an American Rosalind E. Franklin Professor of genetics and chairwoman of the Institute of Medicine Board at the Population Health and Public Health Practice who became a 2013 recipient of the David Rall Medal.
Wright Clayton was born in Houston, Texas where she attended school. She graduated from Duke with a degree in zoology and then obtained master's degree in biochemistry from Stanford University. Some years later she got her degree in law from Yale, and medical degree from Harvard respectively.
From 1988 she served as Vanderbilt University faculty member and since that time have published two books and over 150 peer-reviewed articles relating to law, medicine and public health. She serves on the advisory board panel of both the National Institutes of Health and Human Genome Organisation. In 2006 she was elected to IOM and three years later became its council member. In 2012 she began her three-year term as its BPH chairwoman. Since November 6, 2013 she serves as Nashville Business Journal editor. Currently she teaches in both medical and law schools and is a director of Vanderbilt's Center for Genetics and Health Policy.
Awards and honours
Clayton is a fellow of both AAAS and American Pediatric Society.
On Sundays she sang in a choir.
Gerald B Hickson; William A Altemeier; Ellen W Clayton (August 1, 1990). "Should promethazine in liquid form be available without prescription?". Pediatrics. American Academy of Pediatrics. 86 (2): 221–225.
Ellen Wright Clayton (1992). "Screening and treatment of newborns". Hous. L. Rev. HeinOnline. 29 (85).
Gerald B Hickson; Ellen Wright Clayton; Penny B Githens; Frank A. Sloan (March 11, 1992). "Factors that prompted families to file medical malpractice claims following perinatal injuries". JAMA. American Medical Association. 267 (10): 1359–1363. doi:10.1001/jama.1992.03480100065032.
Ellen Wright Clayton (October 1, 1992). "Issues in state newborn screening programs". Pediatrics. American Academy of Pediatrics. 90 (4): 641–646.
Ellen Wright Clayton; Gerald B Hickson; Cynthia S Miller (March 1, 1994). "Parents' responses to vaccine information pamphlets". Pediatrics. American Academy of Pediatrics. 93 (3): 369–372.
A Kohrman; E Wright Clayton; JE Frader; MA Grodin; KL Moseley; IH Porter; VM Wagner (1995). "Informed consent, parental permission, and assent in pediatric practice". Pediatrics. American Academy of Pediatrics. 95 (2): 314–317. ISSN 0031-4005.
Ellen Wright Clayton, Vickie L Hannig; Jean P Pfotenhauer; Robert A Parker (March 1996). "Lack of interest by nonpregnant couples in population-based cystic fibrosis carrier screening". American Journal of Human Genetics. Elsevier. 58 (3): 617–27. PMC 1914565 . PMID 8644721.
Gerald B Hickson; James W Pichert; Charles F Federspiel; Ellen Wright Clayton (January 1, 1997). "Development of an early identification and response model of malpractice prevention". Law and Contemporary Problems. Duke University School of Law: 7–29.
Ellen Wright Clayton (June 1, 1997). "Genetic testing in children". Journal of Medicine and Philosophy. Oxford University Press. 22 (3): 233–251. doi:10.1093/jmp/22.3.233.
Ellen Wright Clayton (June 1, 2002). "The complex relationship of genetics, groups, and health: what it means for public health". Journal of Law, Medicine & Ethics. Blackwell Publishing. 30 (2): 290–297. doi:10.1111/j.1748-720X.2002.tb00395.x.
Ellen Wright Clayton (March 1, 2005). "Informed consent and biobanks". The Journal of Law, Medicine & Ethics. Blackwell Publishing. 33 (1): 15–21. doi:10.1111/j.1748-720x.2005.tb00206.x.
Ellen Wright Clayton; Lainie Friedman Ross (January 4, 2006). "Implications of disclosing individual results of clinical research". JAMA. American Medical Association. 295 (1): 33–38. doi:10.1001/jama.295.1.37-a.
Jeffrey R Botkin; Ellen Wright Clayton; Norman C Fost; Wylie Burke; Thomas H Murray; Mary Ann Baily; Benjamin Wilfond; Alfred Berg; Lainie Friedman Ross (May 1, 2006). "Newborn screening technology: proceed with caution". Pediatrics. American Academy of Pediatrics. 117 (5): 1793–1799. PMID 16651338. doi:10.1542/peds.2005-2547.
Dan M Roden; Jill M Pulley; Melissa A Basford; Gordon R Bernard; Ellen W Clayton; Jeffrey R Balser; Dan R Masys (May 21, 2008). "Development of a large-scale de-identified DNA biobank to enable personalized medicine". Clinical Pharmacology & Therapeutics. Nature Publishing Group. 84 (3): 362–369. doi:10.1038/clpt.2008.89.
Ellen Wright Clayton (June 1, 2008). "Incidental findings in genetics research using archived DNA". Journal of Law, Medicine & Ethics. Blackwell Publishing. 36 (2): 286–291. PMC 2576744 . PMID 18547196. doi:10.1111/j.1748-720X.2008.00271.x.
Susan M Wolf; Frances P Lawrenz; Charles A Nelson; Jeffrey P Kahn; Mildred K Cho; Ellen Wright Clayton; Joel G Fletcher; Michael K Georgieff; Dale Hammerschmidt; Kathy Hudson; Judy Illes; Vivek Kapur; Moira A Keane; Barbara A Koenig; Bonnie S LeRoy; Elizabeth G McFarland; Jordan Paradise; Lisa S Parker; Sharon F Terry; Brian Van Ness; Benjamin S Wilfond (Summer 2008). "Managing incidental findings in human subjects research: analysis and recommendations". The Journal of Law, Medicine & Ethics. Blackwell Publishing. 36 (2): 219–248. doi:10.1111/j.1748-720X.2008.00266.x.
Lainie Friedman Ross; Ellen Wright Clayton (June 18, 2009). "Clinical and ethical considerations in managing carrier detection". American Journal of Public Health. 99 (8): 1348–1349. PMC 2707475 . PMID 19542030. doi:10.2105/AJPH.2009.161554.
Jill Pulley; Ellen Clayton; Gordon R Bernard; Dan M Roden; Daniel R Masys (February 1, 2010). "Principles of Human Subjects Protections Applied in an Opt‐Out, De‐identified Biobank". Clinical and Translational Science. Blackwell Publishing. 3 (1): 42–48. doi:10.1111/j.1752-8062.2010.00175.x.
Ellen Wright Clayton; Amy L. McGuire (February 9, 2012). "The legal risks of returning results of genomics research". Genetics in Medicine. Nature Publishing Group. 14 (4): 473–477. doi:10.1038/gim.2012.10.
Lainie Friedman Ross; Mark A Rothstein; Ellen Wright Clayton (July 24–31, 2013). "Mandatory extended searches in all genome sequencing: "incidental findings," patient autonomy, and shared decision making". JAMA. 310 (4): 367–368. PMID 23917281. doi:10.1001/jama.2013.41700.
Ellen Wright Clayton; Karen K Steinberg; Muin J Khoury; Elizabeth Thomson; Lori Andrews; Mary Jo Ellis Kahn; Loretta M Kopelman; Joan O Weiss (December 13, 2013). "Informed consent for genetic research on stored tissue samples". JAMA. American Medical Association. 274 (22): 1786–1792. doi:10.1001/jama.1995.03530220052033.
