Puneet Varma (Editor)

Bloodwise

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Formation
  
1960

CEO
  
Cathy Gilman (2007–)

Founded
  
1960

Website
  
bloodwise.org.uk

Headquarters
  
London

Type of business
  
Registered charity

Bloodwise httpslh6googleusercontentcom4vc86oYKosMAAA

Purpose
  
Blood cancer research, Patient support

Formerly called
  
The Leukaemia Research Fund, Leukaemia & Lymphoma Research

Profiles

Bloodwise (previously known as Leukaemia & Lymphoma Research) is a UK based charity dedicated to funding research into all blood cancers including leukaemia, lymphoma and myeloma, as well as to offering information and support to blood cancer patients.

Contents

Bloodwise's vision is to beat blood cancer. They invest money into blood cancer research to ensure that all patients have their disease diagnosed early and accurately, receive personal, targeted treatments which are effective and have minimal side effects in order to beat or manage their cancer.

History

Bloodwise was originally set up in 1960 as the Leukaemia Research Fund. The charity was started by the Eastwood family from Middlesbrough who began raising money following the death of their 6-year-old daughter Susan.

Since its foundation in 1960, Bloodwise has invested over £500 million in a number of different research projects which have helped improve understanding, diagnosis and treatment of blood cancers.

In 1960 children diagnosed with leukaemia had a very poor chance of survival and Susan’s parents were determined to make something positive come from their personal tragedy, so they started fundraising for research that would find a cure for leukaemia. Since then the charity has expanded to include over 150 branches. The research funded by the charity has enabled more people than ever before to survive blood cancer. The survival rate for the most common form of childhood leukaemia has increased to over 90%, and for adults the survival rate is now as high as 70-80% for some forms of blood cancer.

In 2011 the charity launched a Trials Acceleration Programme (TAP) to enable quicker and greater access to new treatments which has subsequently received government recognition as a model of good practice. This programme aims to make the process of clinical trials quicker and easier within the UK. TAP links 13 treatment centres coordinated by a central hub in Birmingham to set up more clinical trials in blood cancer. Because of this geographical spread, it means 20 million people in the UK could have access to the very latest promising blood cancer treatments, if they needed it. Until 2015, 16 new clinical trials have either been opened or approved thanks to TAP.

A genetic study by a group of Newcastle University scientists published in the Journal of Clinical Oncology found that another research project funded by Bloodwise had reduced chances of a rare subtype of childhood leukaemia returning by 75%.

In the financial year 2015, the charity has been able to invest £32.3 million in gross new grant commitments, one of the biggest commitments they've ever made (FY14: £23.2 million). A full list of the charity's current research projects can be found on the National Cancer Research Institute’s International Cancer Research Portfolio.

Activities

The charity receives no government funding and is entirely dependent on voluntary donations from fundraising events or individuals in order to fund its research.

Fundraising Events: The charity holds a number of fundraising events throughout the year including several shows at the Royal Albert Hall and sports events such as The London Bikeathon, which is the largest independently organised bikeathon in the capital.

Sports Events: Supporters of the charity take part in a number of sporting events throughout the year. The events include running, cycling, swimming, triathlons and challenges. Their bright colourful t-shirts can often be seen at events up and down the country, as many supporters take part throughout the year as part of the charity’s unstoppable sports team.

Bloodwise Shop: The charity sells a range of ethically sourced gifts through their online shop, with all profits going towards blood cancer research.

Information and Support Services

Bloodwise also writes and publishes patient information on a wide range of subjects including blood cancers and related disorders, treatment options and lifestyle issues, and booklets specifically designed for children with blood cancers.

Bloodwise provides information for children, parents and many other people affected by blood cancers as well as detailed information on the various types of leukaemia, lymphoma and myeloma.

Specific sub-sets of leukaemia included are;

  • Acute lymphoblastic leukaemia
  • Acute myeloid leukaemia
  • Hairy cell leukaemia
  • Chronic lymphocytic leukaemia
  • Childhood leukaemia
  • Chronic myeloid leukaemia
  • Acute promyelocytic leukaemia
  • Chronic myelomonocytic leukaemia (CMML)
  • Large granular lymphocytic leukaemia
  • Plasma cell leukaemia
  • T-cell acute lymphoblastic leukaemia (T-ALL)
  • Specific sub-sets of lymphoma included are;

  • Hodgkin's lymphoma
  • Non-Hodgkin lymphoma
  • Waldenstrom Macroglobulinaemia
  • Specific sub-sets of myeloma included are;

  • Multiple myeloma
  • Other blood disorder information;

  • Myelodysplastic syndromes
  • Myeloproliferative neoplasms
  • MGUS
  • Solitary plasmacytoma
  • Celebrity Supporters

    The charity has a number of celebrity supporters, including Alastair Campbell who is currently their Chairman of Fundraising; their patron the Duke of Kent, Sir Ian Botham who is the president of the charity; a significant number of the Emmerdale cast, a popular British soap opera in the 1970s and 1980s; Sam Heughan, star actor of Scottish time-travel drama Outlander, and the Calendar Girls who have raised over £3 million with their story since 1999.

    The inspirational story of the Calendar Girls has been recently transformed into a new musical written by Gary Barlow and Tim Firth, The Girls musical, a show that Bloodwise will benefit from. The musical will run from 14 November at the Leeds Grand Theatre, playing until Saturday 12 December 2015, before moving to Salford's Lowry Theatre from Friday 8 to Saturday 30 January 2016.

    References

    Bloodwise Wikipedia