Pulmonary capillary hemangiomatosis is a rare cause of pulmonary hypertension which occurs predominantly in young adults.
Patient registry
Pulmonary capillary hemangiomatosis patients, families, and caregivers are encouraged to join the NIH Rare Lung Diseases Consortium Contact Registry. This is a privacy protected site that provides up-to-date information for individuals interested in the latest scientific news, trials, and treatments related to rare lung diseases.
References
Pulmonary capillary hemangiomatosis Wikipedia(Text) CC BY-SA