Trisha Shetty (Editor)

List of neurofibromatosis charities

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These organizations provide support for those challenged by neurofibromatosis:

  • Australia:
  • NF Australia and the Children's Tumour Foundation of Australia, a nonprofit charitable organisation supporting research and providing awareness, resources and support
  • Little Frog Foundation, a nonprofit organization working providing information and resources for families dealing with NF1, NF2, and tumour-related neurofibromatosis in Australia
  • Belgium: NF KONTAKT.be, a nonprofit organization providing information and resources for families, Schools and Health Care workers dealing with NF1, NF2, and tumour-related neurofibromatosis in Belgium and providing awareness and support of Neurofibromatosis in Europe.
  • Canada:
  • The Neurofibromatosis Association of Quebec
  • NF Society of Ontario
  • Europe:
  • European Neurofibromatosis Group - ENFG is a non-profit organisation of health-care professionals and researchers in Europe, working on Neurofibromatosis and related disorders
  • France:
  • The Neurofibromatosis and Recklinghausen Association
  • United Kingdom:
  • The Neuro Foundation
  • Childhood Tumour Trust – a UK trust that supports children and families affected by NF1 by providing tools to campaign for better awareness and early diagnosis, as well as keeping family unity.
  • United States:
  • Neurofibromatosis Midwest - NF Midwest is committed to improving the lives of children, adults, and families impacted by neurofibromatosis. Their continued focus and foundation is on Clinics, Awareness, Research, Education and Support in the states of Illinois, Indiana, Iowa, Kentucky, Wisconsin, and the eastern half of Missouri.
  • Neurofibromatosis Network - NF Network is the leading national organization advocating for federal funding for NF research and the development of local NF organizations. Founded in 1988 by several strong local NF organizations wishing to establish a national NF organization, which allowed for autonomy within the individual organizations as well as collaboration on activities that were national in nature.
  • Neurofibromatosis Northeast, a nonprofit organization dedicated to finding a treatment and the cure for neurofibromatosis by promoting scientific research, creating awareness, and supporting those who are affected by NF.
  • The Children's Tumor Foundation, a nonprofit organization working towards finding a cure and improving care for individuals living with neurofibromatosis.
  • Just Ask! Foundation: A nonprofit organization helping people affected by neurofibromatosis lead more productive and satisfying lives.
  • Tumornators A group of Fundraisers leading the way with the Children's Tumor Foundation for Schwannomatosis research.
  • The Littlest Tumor Foundation, a nonprofit organization dedicated to finding a preventative therapy and treatment for tumor growth in children and providing wellness scholarships to families dealing with Neurofibromatosis.
  • B the Difference - Established in 2011 to support individuals and their families battling Neurofibromatosis through the B Happy program. B Happy provides all-inclusive trips to NF recipients and their families which gives participants the chance to escape hospital beds, routine tests, MRIs, chemotherapy and more to forget their everyday worries, while embarking on a journey they will never forget.
  • References

    List of neurofibromatosis charities Wikipedia


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